Mama Outpost: Voyage through Childhood Cancer

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Mama Outpost: Aiden’s Voyage with Childhood Cancer

 

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6 days post 3rd surgery. Aiden is doing very well and healing nicely. Saturday he had a fantastic day at Carp Fair and was very excited for school this morning. Thank you to his class for making it extra special by decorating his desk with balloons! I decided to just send him for half day and although he had a great day and full of beans at school before I even unloaded the van I came in to find him fast asleep on couch. Win on the half day decision! #roadtorecovery #healing #mentalhealthawareness #goldseptember #childhoodcancerawareness #medulloblastoma #braincancer #braintumor Photo from yesterday but this boy is super happy to be home! He smiled the whole drive home! First thing we both did was have baths in our own tubs!!! The small pleasures you take for granted. I guess one positive of this whole voyage would be the ability to appreciate all the small things soooo much more and realize how little you really need. Aiden will be off school this week and then see how he feels for next but he is definitely recovering well. Thank you everyone for all your kind messages. #recovery #liveeachday #mentalhealth #goldseptember #childhoodcancerawareness #medulloblastoma Nothing like good friends and poop slime to raise the spirits! It is truly amazing the difference in Aiden over night post surgery 3 and such a relief. Plan is discharge tomorrow!!!! #homesweethome @ronald_mcdonald_house #goldseptember #childhoodcancerawareness #mentalhealth #medulloblastoma #bestfriends #ottawa #boyswillbeboys #kidsbeingkids Look who came to visit us! Someone would be very proud of us right now! #dogsofinstagram @donnyschouten #mentalhealth #therapypup #childhoodcancerawareness #goldseptember #goodforthesoul #medulloblastoma #blackstallion @cheohospital Aiden is so far, doing great this morning! He has not had exam from neurologist yet but Aiden sat in chair and went for a small walk on ward (first time since being admitted) and of course being witty and smiling! fingers crossed, we are just heading down to MRI now so hopefully pictures show the same!!!#positivethinking #recovery #childhoodcancerawareness #goldseptember #mentalhealth #medulloblastoma #sickkids #neurosurgery #hospitallife #beatthis #notalone #morethan4 #warrior Well I don’t know what to say my kid is fucking amazing and braver then the mightiest warrior! I asked him if he was scared, he nodded but with a shy grin. I said he is so good at hiding it if I was scared I would look like this (and did my best terrified face”) he laughed and I kissed him on the forehead told him I loved him and assuring him I was right here and the doctors where going to get him fixed up. Then off for surgery 3 in 3 days he went. The scans still show pressure so they are going in to revise the shunt again. Aiden has now had ever neurosurgeon at cheo cut into his head. This time he has the very first surgeon he had in 2016 who did the resection and first shunt. I figure if he can do a 16hr surgery this should be a no problem.... right? I know there is a lot of people following Aiden the last couple days thanks you for all the kind messages. #mentalhealth #goldseptember #childhoodcancerawareness #medulloblastoma #mentalhealthawareness #braincancer #neurosurgery #cancer #recovery

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