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Mama Outpost:

Voyage through Childhood Cancer

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Mama Outpost: Aiden’s Voyage with Childhood Cancer

 

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And this is why they say one day at a time. Makes you appreciate the good days so much more that you almost forget the bad ones, but then the bad days come and you forget the good ones! #childhoodcancer #livelife #lovelife Day in the life.... tip #612 when you look the best on the outside people ask fewer questions about the inside. Started my day 6am... shower, blow dry, straightener, makeup. I was so great full to have a friend able to call spur of moment and ask for company to cheo today. I had started driving with Declan and Aiden and THE nauseating feeling overwhelmed my body. I finally believe I am strong but I have never felt weaker at that moment. My chit chat friend kept my head occupied and was exactly what I needed. After order of two double double’s we were on our way down with 4 kids under 10 in toll on our “party” to @cheohospital. I was called to the back and it was what I expected, although knowing the outcomes did not make it any easier. Fuck you Cancer, you fucking asshole! I hate you! you bastard! So leaving, after looking at screens of the monster growing, I returned to the room hiding all fears and sadness. Only my friend could see beneath my disguises. “Where do you want to go for lunch” I ask with Aidens reply “all you can eat buffet” lmao 😂 ok Aiden! good choice for the boy who has difficulty eating one slice of a mandarin orange. Tip #613 Live in the moments that make you smile not cry. Seeing him smile and just love the experience with friends was worth the overdraft and over priced meal that was not touched . I would have paid triple to relive the experience of him pushing food around his plate but his unbelievable smile and jokes and company. It was happy/sad which is a normal occurrence in the life of an oncology parent. His beaming smile as he came back to the table with two cotton candy sticks is locked in the vault. And seeing Declan with a school age friend smiling over unlimited desert kept my mind from the darkness that’s keeps trying to kidnap me. We have had so many messages today of warm wishes and prayer and thank you to every one of them. I am especially thankful to Aiden and Declans school for their genuine love for my children. Back at home I am surrounded by family, love and $10 pizza from independent. We chat and the kids play, I even got a cake! A fuck you cancer we will live in the moment cake! #childhoodcancer What a great way to brighten our day! Meet Infinity Aidens new baby chick! Yes I am nuts 🥜 #livelife #lovelife #childhoodcancerawareness #medulloblastoma #chemotherapy #braincancerawareness #boymom #farmlife #funnyfarm #chickens “Really Aiden your going to go on the thing that makes you vomit!?” After a full day in bed yesterday it is Soooo great seeing a smile this morning I knew fresh air would be good! This is paediatric cancer! #childhoodcancerawareness #fuckcancer #medulloblastoma #braincancerawareness #chemotherapy After a weekend away, Aiden shows me his wrist from the IV on Friday. My heart breaks he has to go through so much. I am also angry, As he shows his brother his war wounds like they are normal. We start two new chemos tonight, praying these are not as hard as the last months on his body. We have been at war for 2 years and it is still so unbelievable. #fuckcancer #medulloblastoma #boymom #braincancer #braincancerawareness #childhoodcancerawareness
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