After a nine month wait for a feeding study we are finally here at Cheo to figure out how we can help Aiden get off g-tube and back to eating normal foods. Aiden has extreme difficulties eating and has been 99% Gtube fed for 2 years now, often coughing or gaging on food. I have…
June 19th, 2019 Yes, we are back in Cheo. The last couple days have been a blur of ambulances, ICU, Isolation, tears and now, thank god some smiles. Saturday morning I woke at 5 am unable to fall back asleep. I went downstairs to my navy couch to putter on my computer with a coffee…
I am going on a rant! I have been off work since March 1 at which time it took 4 months for my EI to kick in, first the doctor had filled a date in wrong, so I had to resubmit this went back and forth three times! Thank god for fundraising done for us…
Holidays and celebrations have taken on a whole new meaning for me since Aidens diagnosis. Every holiday is a refection of where we were the previous years and a gratefulness for more time. October 2016, Aiden had just gotten out of surgery, unable to walk or talk. I think back to this time and it…
This is Childhood Cancer! Aiden has been feeling pretty yucky since Mondays LP and MRI. He also received a new chemotherapy into his spine that he would get once a month. Although he has short burst of energy, overall he is pretty fatigued and complaining of headaches. These symptoms can be a mix of things,…
I will never be able to look back and say it was not for lack of trying. I have faltered, I am not this strong person people see all the time, but….
I have tried to be positive but it just seemed since December it was bad news after bad news. This last MRI I prepared myself for the worst. We had even talked about taking Aiden off the Chemo if it once again showed it was not working. Seeing the strain the chemo puts on his body has been so heartbreaking, every round just getting harder and harder to see him go through. I have been so focused on creating the best experiences for the boys and memories, living life to the fullest with the time we have.
On Monday, The University of Ottawa Faculty of Medicine Smiling Over Sickness Group hosted their annual Shave for a Cure event in support of Childhood Cancer Canada. Every year, medical students raise funds, cut their luscious locks and shave their heads in support of Childhood Cancer Research. It was an honour to speak at this event…
Sitting on a train, this time so different. I am not heading to Sick Kids (well not really) I am not lugging a wheel chair and feeding pump and meds. I am not sitting with a sick child sleeping on my lap. I have myself and headphones. I am smiling, I feel worry free, I…
Air raid from every angle, battlefield on all sides It seems attacks are on, everything that my heart finds. A heart once full of sunshine, rainbows and innocence Now holds together with duck tape, glue and a sad stitch. My heart still beats with little cracks, pieces chipped and shattered This merry-go-round of insanity, it just…