I will never be able to look back and say it was not for lack of trying. I have faltered, I am not this strong person people see all the time, but….
I have tried to be positive but it just seemed since December it was bad news after bad news. This last MRI I prepared myself for the worst. We had even talked about taking Aiden off the Chemo if it once again showed it was not working. Seeing the strain the chemo puts on his body has been so heartbreaking, every round just getting harder and harder to see him go through. I have been so focused on creating the best experiences for the boys and memories, living life to the fullest with the time we have.
Sitting on a train, this time so different. I am not heading to Sick Kids (well not really) I am not lugging a wheel chair and feeding pump and meds. I am not sitting with a sick child sleeping on my lap. I have myself and headphones. I am smiling, I feel worry free, I […]
Last year as Aiden and I hung out at SickKids Hospital in Toronto one thing that kept us occupied was dreaming of wishes. I had been contacted from Make-A-Wish and Children’s Wish just before Aiden started his Chemotherapy. I remember asking what qualified Aiden to have a wish, the answer being Brain Tumours and Leukaemia […]
10. Communication is essential but verbal is a small part . With Aiden’s voice still missing we have learned there are many forms of communication but the most important thing is being able to communicate. We have worked so hard to figure out our own way, thumbs up, pointing, picture boards, iPad Apps, Smiles, reading […]