Mommyyyy, Mommyyyy.” I awake in a panic. I call out Aiden’s name but then realize he is at his Dads. “Where is my phone?” I look to my side table, it’s not there. I rush downstairs and pick up my boyfriend Jays phone from the table. “What’s the number? What’s the number?” I send text […]
I can’t even use the word exhausted to discribe our lives right now as it does not even come close to the actual feeling. This round of chemo is taking its toll, beating Aiden down so bad he can hardly hold his head up. For over a week now Aiden has pretty much been on complete bed rest except for frequent trips to the washroom to expel everything from his body…..
One of the first weeks of Aidens diagnosis, inpatient in the oncology wing at Cheo, 4 North, I remember talking to another mom in the hallway. Her son was a teenager with ALL Leukaemia. He was on isolation, meaning grounded to a small room unable to leave and have as few visitors as possible to […]
After a nine month wait for a feeding study we are finally here at Cheo to figure out how we can help Aiden get off g-tube and back to eating normal foods. Aiden has extreme difficulties eating and has been 99% Gtube fed for 2 years now, often coughing or gaging on food. I have […]
June 19th, 2019 Yes, we are back in Cheo. The last couple days have been a blur of ambulances, ICU, Isolation, tears and now, thank god some smiles. Saturday morning I woke at 5 am unable to fall back asleep. I went downstairs to my navy couch to putter on my computer with a coffee […]