June 19th, 2019 Yes, we are back in Cheo. The last couple days have been a blur of ambulances, ICU, Isolation, tears and now, thank god some smiles. Saturday morning I woke at 5 am unable to fall back asleep. I went downstairs to my navy couch to putter on my computer with a coffee […]
Holidays and celebrations have taken on a whole new meaning for me since Aidens diagnosis. Every holiday is a refection of where we were the previous years and a gratefulness for more time. October 2016, Aiden had just gotten out of surgery, unable to walk or talk. I think back to this time and it […]
This is Childhood Cancer! Aiden has been feeling pretty yucky since Mondays LP and MRI. He also received a new chemotherapy into his spine that he would get once a month. Although he has short burst of energy, overall he is pretty fatigued and complaining of headaches. These symptoms can be a mix of things, […]
I will never be able to look back and say it was not for lack of trying. I have faltered, I am not this strong person people see all the time, but….
I have tried to be positive but it just seemed since December it was bad news after bad news. This last MRI I prepared myself for the worst. We had even talked about taking Aiden off the Chemo if it once again showed it was not working. Seeing the strain the chemo puts on his body has been so heartbreaking, every round just getting harder and harder to see him go through. I have been so focused on creating the best experiences for the boys and memories, living life to the fullest with the time we have.